Organ Donation-Transplant

If you have Cystic Fibrosis and are interested in or have been approved for transplant, we hope the following will provide you with information and resources to learn more about the transplant journey and how you can survive transplant both emotionally and financially.

The Butterfly: Life has wings...or rather life should have wings. When Cystic Fibrosis damages the lungs with scarring from past infections, and antibiotics no longer give the relief they once did, and the quality of life is stalled, or the length of life is shortened when you are told, "you have only a couple of years left", you want those wings back to fly. Lung Transplantation is the option to get those wings once again and live your life dreams.

For those who are fortunate enough to witness the actual lung transplantation surgery, they will describe it as a moving experience that is emotional and awe inspiring. When the old lungs are removed, appearing much like raw liver, and the new lungs are taken from the cooler they have been transported in, the light pink, white new lungs are in such contrast to the old. But the more breath taking experience is to see the new lungs take life when they are connected. It is described as "like beautiful butterfly wings, opening for the very first time, they expand and you can see the beauty in life and in good lungs". Like butterfly wings opening for the first time, so is the size and shape of the new lungs...a comparison that has great meaning to those with Cystic Fibrosis who get the gift of new lungs and a chance to live their dreams.

As you consider and journey through transplant, read inspiring stories of transplant survivors. Taking Flight -Inspirational Stories of Lung Transplantation is available through the Lungs for Life Foundation.

Interested in submitting your personal transplant journey for consideration on our blog? Contact us for details.


About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.


The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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