Thursday, June 26, 2014

Cystic Fibrosis Pharmacy of Florida

If you do a search for "cf pharmacy" or "cystic fibrosis pharmacy", the CF Pharmacy of Florida does not come up as the first link. BUT, if you are a savvy internet user, you know that sometimes the best of links are not always the first ones listed!

Go down a little further and you will find the title "Freedom HHCS", which also isn't very recognizable -but look at the web address link and you will see "". Back in 2006, a patient contacted Lungs for Life for assistance and introduced us to the CF Pharmacy. I made contact with Beverley Donelson (a.k.a. "Grandma Bev") asking for more information on the CF Pharmacy.

One of the questions I asked was for clarification on whether the CF Pharmacy of Florida was affiliated in any way with the Cystic Fibrosis Foundation's (CFF) pharmacy.

Bev immediately responded to my email and here is a summary of that response:

The CFF has a pharmacy. They don't run it. They subcontract the services of another Rx (pharmacy). They do not have a pharmacist (on staff). They can ONLY sell to those with CF and TX (transplant), if they have CF -and only medications.

The CF Pharmacy of Florida were the first, and for over 6 years, the only Cystic Fibrosis PHARMACY in the USA. We service folks all over the world (if their country allows).

We specialize in all Respiratory, TX meds, Diabetes meds and equipment/supplies. We also do alternative meds. We have all nutritional supplements. We do compounding to order and IV's. We also flavor meds when asked (if possible). We deliver directly to your home or address you tell us to. We send out automatically each month as requested. We call for refills for you when needed.

CF Pharmacy of Florida

If you still have questions after reviewing the information on their website, you may contact Beverley Donelson via email: bevd [at] hhcs (dot) com.

Feel free to comment below on your experience with the CF Pharmacy of Florida and/or additional information not already contained in this blog post.

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Wednesday, June 18, 2014

Subscribe to BREATHE and Stay Informed

The year 2014 has become the year of changes. Not all of us welcome change. But, the changes with Lungs for Life and the BREATHE Blog are all good ones!!

I am slowly getting around to dissolving the charity portion of Lungs for Life, so that I can put my focus on providing resources and information for cystic fibrosis, organ donation and transplant. Also, you will notice the addition of Asthma to the BREATHE Blog. Adding this lung disease made sense, (a) because I have Asthma and (b) it affects the lungs which was/is the core focus of Lungs for Life.

Changes are coming for the look and feel of the blog too, but for now I wanted to let you know of an important change that has already been put in place. This recent change affects all of you who had previously subscribed to the Lungs for Life BREATHE Blog. The RSS feed address has been updated and to continue receiving post alerts, you will need to update your feed. The good news -it's really easy!

For all current and NEW subscribers, simply select your feed method (by RSS or Email) using the buttons near the top, in the right hand column (see image above for what to look for). Subscribing is FREE and the best part is you will always receive valuable blog updates.

I am looking forward to sharing with you all the information and resources I have gathered over the years.


About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.


The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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