Monday, March 14, 2011

Cystic Fibrosis Explained by Oli and Nush

I came across this short film, made for the Cystic Fibrosis Trust ( by Absolutely Cuckoo. It's a fantastic video that helps children with cystic fibrosis understand their condition and explains to other (non-affected) children what Cystic Fibrosis is.

I remember, as a child, struggling to understand what cystic fibrosis was when I was old enough to understand that my oldest brother, Eddie, was diagnosed with CF. I only wish there was this short film that I could have watched.

Thanks for sharing the video, Joanne!


Monday, March 7, 2011

The Marilyn D. Roman Memorial Fund

It is with gratitude and appreciation that we accept contributions being made in memory of Marilyn D. Roman (Illinois). Before Marilyn's passing (February 28, 2011) she designated the Lungs for Life Foundation to receive contributions in her memory and in lieu of flowers.

We learned Mrs. Roman's nephew, Todd, has cystic fibrosis (CF) and had a successful transplant (TX) in St. Louis -he is now 30 years old. This personal connection to both CF and transplant is why she desired for memorial contributions to be made to the Lungs for Life Foundation.

The Marilyn D. Roman Memorial Fund has been set up to receive contributions that will allow the Lungs for Life Foundation to assist cystic fibrosis individuals and families with both pre- and post- transplant expense needs.

All donations received under this fund will be acknowledged to the Roman Family.

Obituary Notice:
Marilyn D. Roman, neeGoldstein, beloved wife of Richard L.; loving mother of Daniel (Marcie) Roman and Lisa (Peter) Buss; cherished grandmother of Jake, Max, Nick, Abby, and Ben; sister of Michael (Marge) Goldstein; sister-in-law of Barbara (Alvin) Silvian; adored niece, aunt, grandaunt, cousin, and friend. Private graveside service. In lieu of flowers, contributions may be made to Lungs for Life Foundation, 135 Battle Green Drive, Rochester, NY 14624.

Published in Chicago Tribune on March 1, 2011

Our deepest condolences to the Roman family at this difficult time.

Did you know Mrs. Marilyn D. Roman? We'd love to hear your fond memories of her. Simply leave a comment to share your thoughts.


About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.


The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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