Wednesday, May 11, 2011

Bronson Hill Arts: Butterfly Notecards

My dear friend and artisan, Barb, over at Bronson Hill Arts has designed a lovely set of handmade butterfly notecards and grouped them into a collection called the Flights of Life Collection.

There are four different butterfly designs in the collection set. Aside from the obvious (how beautiful they are!), Barb has graciously offered to donate a portion of the proceeds from the sale of each set to the Lungs for Life Foundation.

These cards have such a variety of uses from a simple handwritten note to a friend to a, birthday card, get well card (perfect for someone recouping in the hospital), 'just because' card or really any occasion. Your purchase will not only support artisan handmade goods, it will also support the mission of the Lungs for Life Foundation.

To order your collection set, simply visit Barb's blog and click on the "ordering" page.

A special THANK YOU to Barb for joining in the support of the Lungs for Life Breathe Blog and for being a sponsoring supporter.


Monday, May 9, 2011

Cystic Fibrosis Patient Becomes Successful Model

A regular hospital visit, to receive treatment for her cystic fibrosis, catapulted Cassie Hawthorne, 22, into the modeling world.

Cassie agreed to have her picture taken for the Birmingham Children's Hospitals' annual book and the photographer who snapped her shots, recommended she visit his studio. Coincidentally, his studio was also above a modeling agency. The rest, as they say, is history.

Her successful modeling career and resume includes promotional work for Tesco and hair emporium Umberto Giannini on TV and in magazines. Cassie was also chosen to front this year's Cystic Fibrosis week, which begins May 14.

Cassie says, modeling gives her the opportunity to glam it up and allows her to forget, if just for a little while, that she has cystic fibrosis. She adds, having the illness gives her the drive to just do things because she never knows what later will bring.

With determination like that Cassie has a bright future ahead of her and is a true inspiration to all who have cystic fibrosis!


Monday, March 14, 2011

Cystic Fibrosis Explained by Oli and Nush

I came across this short film, made for the Cystic Fibrosis Trust ( by Absolutely Cuckoo. It's a fantastic video that helps children with cystic fibrosis understand their condition and explains to other (non-affected) children what Cystic Fibrosis is.

I remember, as a child, struggling to understand what cystic fibrosis was when I was old enough to understand that my oldest brother, Eddie, was diagnosed with CF. I only wish there was this short film that I could have watched.

Thanks for sharing the video, Joanne!


Monday, March 7, 2011

The Marilyn D. Roman Memorial Fund

It is with gratitude and appreciation that we accept contributions being made in memory of Marilyn D. Roman (Illinois). Before Marilyn's passing (February 28, 2011) she designated the Lungs for Life Foundation to receive contributions in her memory and in lieu of flowers.

We learned Mrs. Roman's nephew, Todd, has cystic fibrosis (CF) and had a successful transplant (TX) in St. Louis -he is now 30 years old. This personal connection to both CF and transplant is why she desired for memorial contributions to be made to the Lungs for Life Foundation.

The Marilyn D. Roman Memorial Fund has been set up to receive contributions that will allow the Lungs for Life Foundation to assist cystic fibrosis individuals and families with both pre- and post- transplant expense needs.

All donations received under this fund will be acknowledged to the Roman Family.

Obituary Notice:
Marilyn D. Roman, neeGoldstein, beloved wife of Richard L.; loving mother of Daniel (Marcie) Roman and Lisa (Peter) Buss; cherished grandmother of Jake, Max, Nick, Abby, and Ben; sister of Michael (Marge) Goldstein; sister-in-law of Barbara (Alvin) Silvian; adored niece, aunt, grandaunt, cousin, and friend. Private graveside service. In lieu of flowers, contributions may be made to Lungs for Life Foundation, 135 Battle Green Drive, Rochester, NY 14624.

Published in Chicago Tribune on March 1, 2011

Our deepest condolences to the Roman family at this difficult time.

Did you know Mrs. Marilyn D. Roman? We'd love to hear your fond memories of her. Simply leave a comment to share your thoughts.


Wednesday, January 5, 2011

Word Décor 'n More: Wall Quotes

UPDATE (6/16/2014): This partner is no longer supporting the Lungs for Life Breathe Blog

Happy New Year!!!

It has been a great start to 2011! With the help of Crystal Allure Jewelry, I'm excited to announce Andrea with Word Décor 'n More has generously offered to donate a portion of the net proceeds from the sale of the Just Breathe wall quote to the Lungs For Life Foundation!

It's a perfect collaboration for both businesses and a special thank you to Andrea for her generosity and support of the Lungs for Life Foundation mission.

How You Can Help
The easiest way to help is simply to spread the word. Tell your friends, family, social network contacts and don't forget to pick one up for yourself!

Here are just a few ideas on using the Just Breathe vinyl wall decal:
-Give as a gift
-Give as a lung transplant anniversary gift
-Adorn your own wall and raise awareness of organ donation and transplant to all your visitors.

Have any more ideas on how to use the Just Breathe wall quote? Please feel free to comment and share your idea(s).

Choose your preferred size and colors over at the Word Décor 'n More website.

Live every moment to its fullest!

Just Breathe...
You'll never live this moment again


Monday, January 3, 2011

Transplant Gatherings -Rochester, New York

Joanne Schum is a member of TAO - Rochester (Transplant Awareness Organization) and she sent me an email that I wanted to share with you. TAO meets regularly for "lung transplant" gatherings and they would like to pull together "organ specific" gatherings. You do not have to be a member of TAO or attend TAO meetings, to be part of the gatherings. The gatherings will be for socializing, sharing, questions and answers, resources, stories, support and FUN!

Below are the DATES, TIME and PLACE for January, February and March 2011. Please contact Joanne Schum directly at the address listed at the end of the post for more details on the gatherings.

3423 Winton Place (S. Winton Road Area, and Brighton Henrietta Town Line Road area)
Rochester, New York

1. Tuesday, January 11th - NOON
(The first meeting will be an introductions, planning, ideas, and getting some topics to discuss. We will also like to name our group.)

2. Monday, February 7th - NOON

3. Monday, March 14th - NOON

We will also discuss other possible locations, or day of the week for future gatherings. Mike's is centrally located and easy to get to from all directions.

REMINDER: Invite anyone else you know who is interested in lungs, the pre and post issues, and your family, friends, whomever would like to attend.

I will have everyone RSVP me, if they plan on going, the day before the meeting. For seating purposes.

I hope you all will consider attending a meeting sometime, should be fun. Please email for more details or to sign up.

Joanne Schum
Email: twoluckylungs [at] juno [dot] com


About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.


The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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