Friday, January 29, 2010

Petition to Enable Treatment of Cystic Fibrosis in Japan

Anabel Stenzel, from The Power of Two, sent me this very important information about the need for action on a petition to enable treatment of CF in Japan.

Currently in Japan, CF is not included in the medical expense assistance program for incurable diseases.

And, the basic medications which are used in Europe and the United States of America, such as pancreatic enzymes for digestion, inhaled antibiotic medication, and inhaled mucolytic enzymes are not approved in Japan or covered by the national health insurance.

Every adult and child with cystic fibrosis deserves to be able to take advantage of the medications and treatments available for cystic fibsosis. These important factors help to extend their lives and allow them to live a quality life.

Please show your support:


Thursday, January 28, 2010

Cystic Fibrosis Lampwork Awareness Bracelet

Now available at Crystal Allure Beaded Jewelry Designs is a beautiful Lovely Lampwork Ribbon Cystic Fibrosis Awareness Bracelet (B151) designed with artisan lampwork purple ribbon awareness glass beads, accented with Swarovski Austrian Crystals, and a mix of both goldfill and sterling silver metals.

Lovely Lampwork Ribbon Cystic Fibrosis Awareness Bracelet (B151)
Lovely Lampwork Ribbon Cystic Fibrosis Awareness Bracelet (B151)
Purple is the awareness support color for cystic fibrosis, which is often referred to as 'sixty five roses' by young children.

Don't forget to check out the matching Cystic Fibrosis Awareness Ribbon Earrings (E220) for a complete awareness jewelry set!
Cystic Fibrosis Awareness Ribbon Earrings (E220)
Cystic Fibrosis Awareness Ribbon Earrings (E220)
Remember, each purchase helps support the mission of the Lungs for Life Foundation.


About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.


The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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