Wednesday, July 28, 2010

New Organ Transplant Awareness Bracelet

It's been awhile since a new design has been rolled out but it's finally here and there are many more to come. This newest design features a lovely centered Swarovski Crystal flanked by sterling silver awareness ribbon blocks with a fully beaded bracelet of sterling silver, Swarovski Crystals, pearls and silver twisted floating rings.

Floating Ribbon Organ Transplant Awareness Bracelet (B177)
Floating Ribbon Organ Transplant Awareness Bracelet (B177)
And what transplant bracelet is complete without our signature butterfly charm and jewelry tag.

Currently, there is only 1 available of this designs so don't miss out. Hurry on over to Crystal Allure Jewelry and snag it before it's gone!


Monday, June 28, 2010

Unusual Gifts That Make You Think Twice

photo source
I happened across this 'gift' while doing a google search and just had to share. I think we would all agree, most gifts are meant to be enjoyed.

But what about the gifts that are meant to get you to think twice?

Such as this lung shaped ashtray.

So tell me, would it make you think twice?

Photo Source: Tree Hugger


Friday, June 25, 2010


Really?! Yea, I'm with you on that.

It sounds like something out of a science fiction movie, but in fact, it is true. I recently read about Yale University researchers who had regenerated the lung of a rat. Did it work? Apparently the lung "lived" for an hour or two. There is still much research to do on this discovery, especially for humans. But, it was stated it could take 20 to 25 years before such a leap for humans is in place, or accepted.

According to the American Lung Association, nearly 400,000 people die of lung diseases each year in the United States alone and lung transplants are far too rare to offer much help.

So what do you think about a human build-a-lung?

And P.S.: Thank you to the rat for dedicating him/herself to science, even if it wasn't his/her choice. :-)


Thursday, June 24, 2010

Submit Your Transplant Story

Joanne Schum is compiling the 2nd edition of "Taking Flight: Inspirational Stories of Lung Transplantation" and is in need of stories.

If you know anyone who had a lung transplant, were/are care takers of lung recipients, or were/are a donor family who donated lungs, have them email Joanne at [luckylungsforjo AT aol DOT com].

An added bonus: If you enter a story you have the opportunity to design the front cover!! Butterflies are the theme.

To learn more about the details of submitting your story, check out the Facebook Group page Lung Transplantation: Taking Flight with New Life. Those who have HAD, or are WAITING for a lung, lungs, or heart/lungs transplant, will find this group helpful.

Joanne Schum is 46 years old. A post double lung transplant of 13 years due to Cystic Fibrosis.


Monday, June 21, 2010

'Presumed Consent' for Organ Donation

Westchester County assemblyman, Richard Brodsky (D-Greenburgh), whose daughter is a two-time kidney transplant recipient wants to flip New York's organ-donation system on its head by presuming people are donors unless they indicate otherwise. The reason: he feels "New York is a completely failed system".

Statistics show:
-The majority of New Yorkers would like to be donors, yet just 13% of residents 18 and older are on the state Donate Life Registry
-More than 9,600 people in the state need organ transplants (New York Organ Donor Network)
-There were just 423 deceased organ donors in New York in 2009

But because both individuals and religious groups have raised legitimate concerns on this subject, he will not be pushing the proposal this session. However, he co-sponsored legislation that would let people consent to giving an anatomical gift through an electronic signature. It has passed both houses and now goes to Gov. David Paterson for his consideration. Right now, 45 states allow electronic signatures for donor registries (New York Organ Donor Network).

Other organ donation reforms he is working on includes requiring the state Department of Motor Vehicles to provide information on organ donations and creating an organ donation tax credit.

In an April Donate Life America report, data showed other states with low donor-registration rates are Texas (an estimated 2 percent), South Carolina (9 percent) and New Hampshire (10 percent), compared to 73 percent in Alaska.

No states have "presumed consent" laws, although there have been attempts in several of them, including Maryland and Pennsylvania. Legislation is under consideration in Illinois. A bill was introduced in the Delaware Legislature two years ago. And a number of European nations, including France, Austria and Spain, have this kind of system in place, and they have seen an increase in organ availability.

It is felt by some that since the majority of New Yorkers and Americans want to donation organs and tissues when they die, the burden should be on the minority to opt out.

The Long Island Coalition for Life Inc. opposes Brodsky's legislation. "This legislation opens up the door to abuse via hastened death of vulnerable people and overriding of family concerns," Jerome Higgins, chairman of the coalition, wrote in a memorandum to lawmakers. "It also goes a step further toward turning human organs into commodities. The sick and disabled need to be protected, not exploited for their body parts."

Mary Ann Baily, a fellow of the Hastings Center, a bioethics research group in Garrison, Putnam County, who once sat on an Institute of Medicine committee that looked at how to boost organ donations, stated that even if all available organs were taken, it wouldn't eliminate waiting lists. Hospitals may not get the maximum number of organs possible if they and organ banks aren't well organized, she said.

Cara Matthews
Gannett Albany Bureau

So what do think about presumed consent? Leave a comment below, we'd love to hear your thoughts!


Tuesday, June 15, 2010

Struggling to Breath with Pulmonary Fibrosis

A video I happened across and wanted to share with you. I'm sure there are "pre-commercials" before the actual video starts.


Thursday, June 10, 2010

Linking Donors To Save Lives

Today I caught notice of a local newspaper article about donors linking together to save lives. Intriqued, I read the article and was quite amazed. It was about a local man who needed a kidney transplant and his sister was more than willing to donate her kidney but she turned out to not be a good match. So, they entered into this kidney chain.

This pay-it-forward kidney donation chain works to match living donors with those in need of a kidney transplant. Rising rates of diabetes, hypertension, obesity and longer lives has resulted in more kidney disease, making it the most-needed organ for transplant.

Photo Source: United Network for Organ Sharing

Theorectically, these chains could go on forever, but typically include a half-dozen pairs. Some chains end when the last willing donor has type AB blood. Participating in a donor chain provides many more long as you have a healthy friend/family member willing to share their kidney.

The national waiting list, in 2009, showed 16,831 kidneys were transplanted nationwide, 62 percent from deceased donors and 38 percent from living donors. Living donors must pass alot of tests but their kidneys transplant better than cadaveric kidneys.

What about the living donor? Live donors can live fine with just one kidney. If illness or injury does hurt a living donor's remaining kidney, they then move to the top of the list of people needing a kidney tranplant (a guideline set by the United Network for Organ Sharing). The surgery is minimally invasive with tiny incisions made in the lower abdomen wall, resulting in a much less needed hospital stay.

For more information:
United Network for Organ Sharing

Alliance for Paired Donation

National Kidney Registry


Tuesday, April 27, 2010

Transplant Awareness Bracelets -Get Your Discount

What?! A discount on designer awareness jewelry? Get outta town. That's right. The exclusive awareness jewelry designs offered by Crystal Allure Jewelry are included in their recent grand re-opening announcement and offer.

That means until April 30, 2010, you can get 20% off your transplant bracelet order! AND for every order you place until then, your name will be entered into a contest to win a FREE $50 gift certificate to spend at!!!

Let's run this down:
1. 20% off your order
2. a chance to win a $50 gift certificate -and-
3. a portion of the proceeds from awareness jewelry sales are donated to charity

Is it me -or is this a fabulous deal?! Now's your chance to get your favorite awareness bracelet (transplant awareness bracelet, cystic fibrosis awareness bracelet) before it's gone. Remember some pieces are one-of-a-kind and cannot be duplicated. Help raise awareness of transplant, organ donation and cystic fibrosis with sparkling jewelry by Crystal Allure!


Friday, January 29, 2010

Petition to Enable Treatment of Cystic Fibrosis in Japan

Anabel Stenzel, from The Power of Two, sent me this very important information about the need for action on a petition to enable treatment of CF in Japan.

Currently in Japan, CF is not included in the medical expense assistance program for incurable diseases.

And, the basic medications which are used in Europe and the United States of America, such as pancreatic enzymes for digestion, inhaled antibiotic medication, and inhaled mucolytic enzymes are not approved in Japan or covered by the national health insurance.

Every adult and child with cystic fibrosis deserves to be able to take advantage of the medications and treatments available for cystic fibsosis. These important factors help to extend their lives and allow them to live a quality life.

Please show your support:


Thursday, January 28, 2010

Cystic Fibrosis Lampwork Awareness Bracelet

Now available at Crystal Allure Beaded Jewelry Designs is a beautiful Lovely Lampwork Ribbon Cystic Fibrosis Awareness Bracelet (B151) designed with artisan lampwork purple ribbon awareness glass beads, accented with Swarovski Austrian Crystals, and a mix of both goldfill and sterling silver metals.

Lovely Lampwork Ribbon Cystic Fibrosis Awareness Bracelet (B151)
Lovely Lampwork Ribbon Cystic Fibrosis Awareness Bracelet (B151)
Purple is the awareness support color for cystic fibrosis, which is often referred to as 'sixty five roses' by young children.

Don't forget to check out the matching Cystic Fibrosis Awareness Ribbon Earrings (E220) for a complete awareness jewelry set!
Cystic Fibrosis Awareness Ribbon Earrings (E220)
Cystic Fibrosis Awareness Ribbon Earrings (E220)
Remember, each purchase helps support the mission of the Lungs for Life Foundation.


About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.


The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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