Monday, August 18, 2014

What Color is Your Awareness Ribbon?

Since the early 1970s, awareness ribbons have been recognized and used to raise awareness of diseases and causes. However, so many designations have been made that it can be confusing to know what color represents the cause closest to your heart.

What Color is Your Awareness Ribbon?
To help answer that question, I'll list a few of the causes that I have come across during my ten-plus years of designing crystal awareness bracelets and handmade jewelry. For those of you who know me, you know topping that list are the following causes and nationally recognized awareness ribbon color(s):

Cystic Fibrosis -purple awareness ribbon
Organ Donation -green awareness ribbon
Transplant -green awareness ribbon
Lung Transplant -green with a butterfly as the symbol designating the transplant is specifically 'lung'

I've been honored over the years to also design custom awareness bracelets for a variety of related causes that include the following causes and nationally recognized awareness ribbon color(s):

Pulmonary Fibrosis -red and blue awareness ribbons
Asthma -gray awareness ribbon
Behcet's Disease -light blue awareness ribbon

If you do not see your cause listed, please check out the full and comprehensive Awareness Colors and Meanings article or the Awareness Ribbons by Cause Color article both by Crystal Allure Beaded Jewelry.

I hope this information has helped guide you in understanding some of the nationally recognized awareness ribbon colors for the cause(s) closest to your heart. And if you don't find your cause listed, please visit the articles, I'm sure you will find them there.

That said....What Color is Your Awareness Ribbon? Share in a comment below.

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Saturday, July 5, 2014

A Little About Joanne Schum

Please note: This article originally appeared on our www.lungsforlife.org site and is being re-posted to our new Lungs for Life website (www.lungsforlife.info). Please take a moment and update your bookmarks with our new website link. Thank you.

Joanne Marie Schum is the youngest of seven siblings of George and Katherine Schum. Growing up in the Rochester, New York area with Cystic Fibrosis (a genetic lung disease), Joanne led a rather normal life, attending college, working in her chosen career field and being with friends and family.

As she reached her mid twenties, life became increasingly more difficult until it was nearly impossible to maneuver and have any quality of life. That is when a lung transplant became the top priority in her life. She temporarily relocated to Chapel Hill, North Carolina while waiting for a bi-lateral lung transplant. She received her much anticipated transplant at the University of North Carolina Hospitals Chapel Hill, on September 12, 1997. Her lung transplant has allowed her to become involved with many organizations; volunteering as a speaker; writing for various Cystic Fibrosis and lung transplant newsletters; board member and mentor.

Never an athlete, in her post-transplant days, she has taken to biking, running, walking, swimming and she participated in the 2000 and 2002 United States Transplant Games. She no longer passes up an adventure and can be found driving tractors, motorbikes, and has also flown in a High Performance Schleicher ASK-21 Sailplane. Her continued great health will allow her many more days with her new 'wings of breath' so she can travel, work, play and enjoy her family and friends.

Update:
Joanne has compiled two very popular cystic fibrosis and transplant resource books:

Taking Flight -Inspirational Stories of Lung Transplantation

Taking Flight -Inspirational Stories of Lung Transplantation, More Journeys

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Thursday, July 3, 2014

Medicare adopts new nationwide coverage policy for The Vest airway clearance system

Please note: This article originally appeared on our www.lungsforlife.org site and is being re-posted to our new Lungs for Life website (www.lungsforlife.info). Please take a moment and update your bookmarks with our new website link. Thank you.

Advanced Respiratory -Lungs for Life Foundation
Medicare has adopted a new nationwide coverage policy for high-frequency chest wall oscillation medical equipment. The policy covers the use of The Vest system for patients with cystic fibrosis, bronchiectasis, and, upon case-by-case review, others fighting respiratory conditions. Below I have attached a copy of our press release dated today. For a complete overview of the policy please visit http://www.thevest.com.

This is tremendous news. Combined with our current policies – shipping The Vest system upon prescription, 30-day in-home trials, patient training, comprehensive reimbursement support and a lifetime warranty – this policy will help make the device immediately accessible to all your patients in need. And now the reimbursement process has just become easier for your Medicare patients – and for us. For that, we all have reason to celebrate.

Along with this improved coverage and easier reimbursement process your patients can have the benefit of the newest model of The Vest system, Model 104, which was just released last month. It offers the same consistent, effective airway clearance therapy as earlier models and it’s portable. Weighing only 17 pounds, it’s half the weight and one-third the size of our previous device – approximately the size of a portable audio system. It’s also digitally automated and easier to use, making it a great choice for all of your patients with airway clearance needs. And its new patient-friendly design makes it easier for patients to be compliant with your orders, resulting in improved outcomes.

Airway clearance therapy via The Vest system is an important part of the standard care regimen for patients with cystic fibrosis, cerebral palsy, muscular dystrophy, bronchiectasis, and COPD. In the last decade more than 30,000 patients have used The Vest system in their home to successfully manage their airway clearance needs, representing over 80,000 patient years of experience.

For more information on The Vest system please visit www.thevest.com. If you would like to visit in person with a local representative, please contact us at 1-800-426-4224 or send us your comments or questions on the web at http://www.thevest.com. We look forward to serving your patients with airway clearance needs. Thank you for your interest and support.

Sincerely,

Elden H. Russell
President, Advanced Respiratory


NEWS RELEASE
FOR IMMEDIATE RELEASE

Advanced Respiratory applauds Medicare’s adoption of a nationwide coverage policy for The Vest airway clearance system

New coverage policy will help patients with cystic fibrosis, bronchiectasis and other respiratory conditions breathe easier

ST. PAUL, Minn., June 16, 2003 – Advanced Respiratory, manufacturer and distributor of The Vest™ airway clearance system, today reported that Medicare has adopted a nationwide coverage policy for the use of durable medical equipment that provides high-frequency chest wall oscillation (HFCWO) therapy.

The coverage policy applies to patients with cystic fibrosis and bronchiectasis, and, on a case-by-case review, patients with other respiratory diseases or conditions.

“We applaud Medicare’s decision, as it will have tremendous impact on the health and quality of life of Medicare patients who are fighting to breathe," said Elden Russell, president and CEO of Advanced Respiratory. "With The Vest system, patients can easily and effectively remove trapped secretions from their lungs. This leads to easier breathing, less infections and hospitalizations, and improved health." Medicare is one of over 1,100 insurers that pay for The Vest system.

The Vest Airway Clearance System Model 104 -Lungs for Life Foundation
The Vest Airway Clearance System
The Vest system is a small and powerful, but gentle medical device – employing HFCWO technology – used in patients’ homes to provide airway clearance therapy. Approximately the size of a portable audio system, the device consists of an inflatable vest attached to an air-pulse generator. The generator rapidly inflates and deflates the vest, compressing and releasing the chest wall 5-20 times per second to create airflow within the lungs. Its gentle pressure moves trapped mucus from the smaller airways in the lungs to the larger airways, where it can be removed through coughing or suctioning. The action also works to thin thick secretions, making them easier to clear.

Advanced Respiratory Inc., headquartered in St. Paul, Minn., is the privately-held manufacturer and distributor of The Vest airway clearance system. For more information about the types of patients that could benefit from The Vest system, Advanced Respiratory and its products and services, visit the company’s Web site, http://www.thevest.com.

Contact:
Kerstin March, Advanced Respiratory, 651.234.1633

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About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact us with any questions or concerns you may have. Thank you.

Credits

Our graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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